[BOD] Fw: Emailing: Apert Syndrome - Cranberry, PA Patch

Thu Sep 22 18:12:32 EDT 2011

Apert Syndrome - Cranberry, PA PatchDan sent this to me.  Scroll down to Nick Wiese  Our probationary member

Ray

----- Original Message ----- 
From: D-IVYWOOD 
To: Ray Mueser ; ray Mueser 
Cc: Ray Mueser 
Sent: Thursday, September 22, 2011 3:51 PM
Subject: Emailing: Apert Syndrome - Cranberry, PA Patch

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Subscribe to the feed for Apert Syndrome 
Wednesday, September 21, 2011
Cranberry Film Festival to Celebrate Differences, Raise Money for Children's Craniofacial Association
Cranberry Cinemas employee Nick Wiese, who has Apert Syndrome,will be the host for Thursday's fundraiser.

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  c.. Yesterday 
 Nick Wiese has a face that sets him apart. Wiese was born with a rare genetic disease, Apert syndrome, that causes craniofacial abnormalities, including fused skulls, fingers and toes. The 24-year-old often is found taking tickets at the Cranberry Cinemas, where he has worked part-time for two years. Regular moviegoers have gotten familiar enough with Wiese that they greet him by name. Others, usually small children, will whisper about Wieseâ€™s unusual appearance â€” sometimes loud enough for him to hear. Occasionally Weis will wait for the parent to shush the child, but heâ€™ll also amble over to talk to the children about his syndrome. â€œI can understand why they canâ€™t help making comments,â€ he said. â€œIf Iâ€™m not busy, Iâ€™ll try to explain to â€¦

In this Article:

Cranberry Cinemas

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40.683609
-80.103668
Cranberry Film Festival to Celebrate Differences, Raise Money for Children's Craniofacial Association
Cranberry Cinemas
GNC, 20111 Rte 19, Cranberry Township, PA
/articles/cranberry-film-festival-to-celebrate-differences-raise-money-for-childrens-craniofacial-association
1797356 
/locations/5414167

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